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NAEC News and Updates

Ways to Participate in CDC Supported Epilepsy Programs 

  • Jun 22 2022
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NAEC is pleased to share more information on two programs supported by the Centers for Disease Control and Prevention (CDC) Epilepsy Program.  The first is a request for epilepsy center physicians and APPs to complete a survey on a Project Echo project on rare epilepsies and the second is the announcement of an information session on the PACES program.

Rare Epilepsy ECHO Survey

The Centers for Disease Control/Epilepsy Foundation has funded a Rare Epilepsy ECHO launching early 2023. Project ECHO (Extension for Community Health Outcomes) is a model created to disseminate knowledge from experts to diverse care providers.  We request feedback from epilepsy center clinicians, nurses, geneticists, and other care providers regarding who would be the optimal audience, gaps and solutions for care, and what content should be included in 8-10 60 minute sessions.

Please click here for the short survey: Rare Epilepsy ECHO – Professional Survey. Please share the survey link with the APPs in your center. Replies are requested by July 5.

For questions, contact: Jeff Buchalter buchhalterj@gmail.com or Ilene Miller ilenepennmiller@gmail.com.buchhalterj@gmail.com

PACES Info Session

PACES is an evidence-based epilepsy self-management program that focuses on the medical and psychosocial adjustment of adults with epilepsy, using a structured approach embedded in a group format for added social support.  The eight-session program was developed with input from patients and clinicians at the University of Washington Epilepsy Center to ensure a patient-driven approach. The program was tested in three separate randomized controlled studies conducted over 10 years. The program showed sustained, significant outcomes at six months and one year in relation to epilepsy self-management/efficacy, mood, and aspects of quality of life. Through federal funding, we are now disseminating PACES nationally for use in clinical settings.

Click here to register for the 30-minute PACES Info   Session: https://form.jotform.com/221527464630150

For questions, contact: Erica Johnson, Ph.D. ericajohnsonphd@uwalumni.com or Bob Fraser, Ph.D. rfraser@uw.edu

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