Rare Epilepsy ECHO Survey
The Centers for Disease Control/Epilepsy Foundation has funded a Rare Epilepsy ECHO launching early 2023. Project ECHO (Extension for Community Health Outcomes) is a model created to disseminate knowledge from experts to diverse care providers. We request feedback from epilepsy center clinicians, nurses, geneticists, and other care providers regarding who would be the optimal audience, gaps and solutions for care, and what content should be included in 8-10 60 minute sessions.
Please click here for the short survey: Rare Epilepsy ECHO – Professional Survey. Please share the survey link with the APPs in your center. Replies are requested by July 5.
PACES Info Session
PACES is an evidence-based epilepsy self-management program that focuses on the medical and psychosocial adjustment of adults with epilepsy, using a structured approach embedded in a group format for added social support. The eight-session program was developed with input from patients and clinicians at the University of Washington Epilepsy Center to ensure a patient-driven approach. The program was tested in three separate randomized controlled studies conducted over 10 years. The program showed sustained, significant outcomes at six months and one year in relation to epilepsy self-management/efficacy, mood, and aspects of quality of life. Through federal funding, we are now disseminating PACES nationally for use in clinical settings.
Click here to register for the 30-minute PACES Info Session: https://form.jotform.com/221527464630150